Short Bowel Syndrome Foundation for Children of New England, Inc.®
Strength in support. Family strong.
The Short Bowel Syndrome Foundation for Children of New England, Inc. (SBSNE, Inc.) is a 501(c)(3) non-profit charitable organization which was created to provide family support for children afflicted with gastrointestinal conditions, birth defects, and diseases which have led to Short Bowel Syndrome (SBS) and their healthcare providers.
SBSNE, Inc. has been created to promote awareness, provide parent-to-parent, financial, and educational support for families who have children who have been diagnosed with Short Bowel Syndrome, as well as providing at least 10% of all monies brought in to various researchers who are investigating the birth defects leading to and and causes of Short Bowel Syndrome.
We appreciate your continued support!
SBSNE, Inc. 5K Run/Walk
When: June 24, 2017
Where: Carousel Village at Roger Williams Park, Providence, Rhode Island
Purpose: To help provide SBS families with a stipend for nutritional purposes to help ease this financial stressor which comes with the condition.
Adults - $25.00 with t-shirt
Children 2yr-10yr - $15.00 with t-shirt
Virtual Participant - $25.00 with t-shirt
SBS Parent/Guardian - $10.00
SBS Child - $5.00
*Registration will be $30.00 after May 1st. We cannot guarentee t-shirt availability after June 1st.
Donate to the 5K:
We are proud to annouce our partnership with Angel Flight East (AFE), a 501(C)(3) nonprofit organization dedicated to serving the community by facilitating free air transportation for children and adults with medical conditions who need to get to treatment far from home.
AFE serves the Northeastern region of the United States, and for destinations beyond our reach, we link with other volunteer pilot organizations. Anyone who requests a flight must be medically stable, able to board an aircraft, and fly in a small non-pressurized aircraft. Volunteer pilots use their own aircraft to fly patients to their destinations. These men and women pay for all expenses for each mission they fly. Most AFE patients require air transportation numerous times over several years for treatment of and follow-up for their conditions including, but not limited to:
We are pleased to announce the launch of the Natural History Registry for Necrotizing Enterocolitis (NEC Registry), a collaborative effort between The Morgan Leary Vaughan Fund (Morgan's Fund) and the National Organization for Rare Disorders (NORD) to study Necrotizing Enterocolitis (NEC). Morgan's Fund was selected by NORD to create the NEC Registry as part of a cooperative project between NORD and the U.S. Food and Drug Administration (FDA) that supports research on rare diseases and how they progress over time—natural history studies. For more information, please visit our Partners page and visit: https://www.necregistry.org/Home/About
To be announced...
Short Bowel Syndrome Awareness Month
Copyright 2017 Short Bowel Syndrome Foundation for Children of New England, Inc.. All rights reserved.
Serial Number: 87288083
*Disclaimer: Short Bowel Syndrome Foundation for Children of New England, Inc.® (SBSNE, Inc.®) is not associated with Short Bowel Syndrome Foundation, Inc. (SBSF, Inc.) out of Nebraska.